Friday, March 10, 2006

Oregon's Death With Dignity Numbers Don't Tell the Whole Story

Numbers tell some of the story. Thirty-eight people took their own lives, legally in 2005 under Oregon’s Death With Dignity Act, according to figures just released from the Oregon State Department of Human Services, which keeps tabs on who gets the lethal doses and why they take them or not take them.

That’s thirty-eight deaths out of the sixty-four prescriptions written. Of those who got the prescriptions and didn’t take the medication, fifteen died from their illnesses and seventeen were still alive. Six people who had gotten their prescriptions during 2004 died in 2005 from the medication. Those numbers have been stable since 2002, one way or the other.

They mostly had cancer. They averaged seventy years of age.

There are more numbers, but that’s all they are, just numbers.

Unless you’ve been at the bedside of one of those numbers, as I have, you can only imagine what a blessing the Oregon Death With Dignity Act has been to the handful of suffering souls (one out of every 800 deaths in Oregon) who have had their final life decision in their own hands.

The opponents of the Oregon law warned against all kinds of horrors. They said thousands would be rushing to Oregon to take advantage of the law. That the law would be used to euthanize the disabled, against their will. That the law would be used by family members wishing to rid themselves of the expense of caring for their dying relations. That people would use the law indiscriminately and there would be lines around the block for prescriptions.

None of what the fear-mongers warned came true. The biggest opponent, the Catholic Church was also the biggest donor to the failed effort to knock down the Oregon law in the two ballot initiatives. The fundamentalist-right and the Republicans were right behind them. Does it seem familiar, the use of fear to persuade? It’s the most pervasive tool among those who wish to control other people’s behavior.

We are all afraid of death. Even if you believe that there’s a benevolent father waiting for you in the clouds, or if you believe that there’s a party of virgins-gone-wild as your reward, nobody wants to die. Nobody except those near death, who wish to end their suffering while they still have a little dignity left. That’s why it’s called Death With Dignity.

That’s how Robert Schwartz died, with dignity, surrounded by his friends and family. An AIDS patient, he was the subject of a two year project by me and co-director Greg Bond to document how one person used the law. He died wearing our microphone.

Every year, when the numbers come out I feel it is my duty in, one form or another, to find a public forum to remind people that each of these numbers is a person who wanted to live, but who also wanted to control the end of life. Each has a separate story. Each took the decision excruciatingly seriously when it came to the time to take the medication.

I watched Robert Schwartz chose two dates for his own death, and then change his mind. I watched him chose to have his enlarged spleen removed so that he might rid himself of some of the pain so that he might live a few more months.

So when you read these numbers, take a moment to consider what each of these people experienced. And then think about your own death for a moment. It isn’t easy, but it’s something you’re going to experience, no matter how indestructible you may feel at this moment.

Several other states are considering Death With Dignity laws, using the Oregon law as a model. The opponents will trot out the same old arguments, but mostly what they’re really saying, underlying their statements, is that their opposition is based on their religion. That’s fine for them. It’s not fine for the rest of us.

Fighting for personal rights and against religious tyranny is a fact of life. It has always been and will always be. The use of religious coercion is a fundamental human flaw, but it has nothing to do with how I wish to choose the manner of my own death.

I’m lucky to live in Oregon.

This also appears on huffingtonpost.com

1 comment:

Wu Tse-tien said...

Thanks, Tom, for this glimpse. I look forward to your documentary. There's been too little information on Oregon's experience. As someone who is determined to exert whatever control I can muster, when it's time to die, your take on the subject cracks open the door.